I know i have posted several threads with lots of questions or getting frustrated so today i wanted to post something positive. Although i say a good day, its probably been a good few days. Having purchased a perch at the weekend my new gadget was up and runnning so yeaterday decided I was going to make a meal (having eaten at mum very regularly for the past 6 months) being me i decided a roast dinner was to be the way ahead looking back prob not one of my brightest ideas, cooking being the easy part. My 4 year old was in his element helping me prepare the vegetables getting them all ready. Got all the prep done then looking down at the floor the croissant my son had for breakfast combined with my dogs hair (a golden retreiver) who casts terribly it looks like hes going through chemo the amount he looses. So time for my next new toy, a roomba robot which i got from ebay as I didnt want to pay for something that doesnt work. So shut all the doors of my kitchen and let my little friend to clean the floor, now it wasnt perfect but my black floor resembled a clean enough floor and i eventually managed to work out how to empty the tray where the debris goes. Then had a lovely time playing infront of the fire with my son and baby daughter until it was time to restart the cooking. Mum and dad came down and had a nice time. They helped clean up as by then I was starting to tire and my muscles were burning. Dont get me wrong theyd been sore for a while but I kept pushing on and I felt good for it.
Today I got up and got ready for my appoinment with the Dietican and OT which ive to travel an hour to get to. Had a successful appointment with both. OT suggested claiming the VAT back on the perch and bath stool i bought, anyone any suggestions.
Came out feeling happy and decided to go and see about a car, its been something ive been putting off as I find decision making hard, so much more indecisive than i used to be.
Currently drive a jeep which eats petrol and is a manual. So decided to go the vaulxwagen (excuse spelling) garage which also is a motability garage. I have never bought a car in my life but within an hour I had purchased my first car and got a very good deal. It matched all my requirements cheap in terms of cheaper roadtax, cheaper insurance, its diesel, has parking sensors back and front which I really rely upon, things have improved but just after my last relapse its good to have reassurance and ive maybe just got lazy and rely on them now. And also city breaking which is handy incase im not on the ball.
And the guy said if required I could get hand pedals fitted, my left leg is weaker after last relapse but still quite strong but right has a mind of its own. It had recovered a fair after the summer big relapse but with so many infections over christmas and another relapse i’m not sure if it felt left out and decided to join in on the action but it seems to be a bit better this weak.
So then went and had a coffee and did some shopping and managed reasonably well without searching everywhere for a seat which is what ive been doing.
I know this post might annoy some people my legs are still quite bad but i’m determined that ms isnt going to beat me, if i can have my children without any pain relief or if I could dance and compete with a fractured foot for 9 months (all be it that i fractured my pelvis during the course of it) then i’ve got to get positive and do what I can.
At the moment I hate getting out of bed Since the amitrypiline I get a lovely sleep now then you wake up and think its been a bad dream and it all comes flooding back the second my foot hits the floor. I am so stiff now but because my legs go to where the average persons leg doesnt they think its not stiff but my right hip is really really stiff and if i’m down playing with the kids i cant walk until the muscle decides to go back to where it should be (advice welcome)
So ive had a lovely few days my muscles are burning but I feel like i deserve them tonight but ive acheved lots of things. Tomorrows job find out about a blue badge, parking miles from the shop did put a slight dampner on the day. Sorry for the long post
Emx