Just reading on bbc that the Victoria Derbyshire programme made a freedom of information request and have published that people with MS getting benefits have dropped from 93% to 50% along with many others like Parkinson’s sufferers and many others.
I have MS, my wife has Parkinsons.
Parkinsons UK comes across as the better organised.
Maybe the problem with MS is that there are too many organisations competing for funding (MS Society, MS Trust, MS-UK come readily to mind).
One bigger organisation would surely have more clout.
That way, they understand the ramifications of what they’re writing. I’m in no way suggesting that they should lie on their statement, just that they should be aware of what they’re doing. They also need to keep in their minds that you should be able to do that walk (or other activity), reliably, safely and repeatedly. So the fact that maybe you once did a 25 metre walk in 19 seconds (if in fact this was correct, she might have been guessing the distance, or mistaking feet for metres) doesn’t mean you’ll be able to do it again, or that it was something you could only do safely once per day, or maybe that day was unusual.
Watch out Carole 25 metres in 19 seconds is as close to 3 miles per hour as makes no difference.
3 MPH is a normal walking speed for an able-bodied person - and you do not want to be in that category!
I would ask for the distance to be checked. Distances that long require a very long tape measure, and usually only a surveyor will have a really long measure (my longest is 50 ft, and that is a hangover from a previous life).
Then, if I was really feeling like an argument, I would want the stopwatch checked as well - and I have a range of stop-watches that I could do this with. Note that any good stopwatch should come with a certificate of accuracy, and the date on this - if they even have it - could be informative.
I definitely think you should talk to your MS nurse about that statement. And get the, to change it. It sounds like what they’ve written is actually impossible for you. Therefore, something about the test was wrong. Either they’ve misjudged the distance, and from what Geoff has said, it’s actually quite likely the marked out distance is feet rather than metres, or the timing was wrong. But if you did in fact sprint 25 metres in 19 seconds, then you still need them to reword the letter. Just because you did it once does not mean that you can do it again. Definitely don’t send that letter with your clam form.