Thank you so much for your comments, it really does mean a lot to me and to hear from people in the same boat. Alison, thank you very much for your message it is extremely helpful and I will get on looking into the treatments ASAP. I was confused as my neurologist originally told me that even if I was diagnosed I would not go on treatment straight away but when he called me a few days ago (to tell me it was now official) he told me that he wanted me to come in as I could then decide whether I wanted to begin treatment. So very confused but I guess I should just wait and see what he says.
Thank you also for your kind words. I have to say it has not been easy, but it is hard to explain why it has not been easy as for the most part you feel fine! I guess that is why it is so hard to come to terms with and, ironically, makes it hard as it just feels so odd to know something is not going right inside you and it will effect you eventually… but not today. I feel that’s what I have to keep remembering. At the moment I am trying to complete my Masters degree and am finding it very hard to concerntrate (I am writing my dissertation at the moment, sitting by yourself with a lot of time to think about other things apart from your work is lethal.) As i said though, now just knowing what is going on is a big relief.
Jon, also thank you so much for the information I would honestly have never have thought about that. Do you know anything about applying for a blue badge? I feel absolutely ridiculous even thinking about it but I live in London and more often than not choose not to drie anywhere because of lack of parking and so have started to think that maybe a blue badge would prove extremely useful? I don’t know I feel silly now writing it down!
I’m sure you have seen this in the news but just incase, very encouraging article:
Cody, unfortunately I do not know what an LP is… so i’m guessing I didn’t have one
Thank you once again xx