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10 years ago today...

I was at the seaside with friends & I got a very painful spot on my eyebrow. (My friends were all laughing as I was making such a fuss about a little spot).

That spot turned into shingles over the right side of my face & head.

Those shingles led me to the GP as I felt SO ill & couldn’t recover my strength.

That trip to the GP led to a dx of ‘post viral fatigue’ & 6 weeks off work.

That 6 weeks led me back to the GP as I was still so tired and weak & could hardly get out of bed let alone work (& was eventually made redundant).

That trip back to the GP led to a referral to an ME specialist.

That appointment with the ME specialist got me dx with ME & referred for a ‘routine’ brain MRI.

That brain MRI showed some ‘worrying bright spots’.

Those worrying bright spots led to an appointment with a neuro.

That appointment with a neuro led to having a lumbar puncture.

That lumbar puncture led to a dx of MS in 2008.

That dx of MS led to a dx of PPMS in 2010 (plus a realisation that I’d been ignoring weird symptoms for years).

And it all started with that little spot on my eyebrow on the 1st of January 2006.

Life eh?

Pat xx

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You make it sound so simple Pat but I’m sure in reality it was a total nightmare? I love the style in which you’ve written it

My dog Lottie was born on that day so something good happened!

Happy New Year to everyone,

Nina X

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Hugs darling. Life’s a bitch etc etc. It’s great how we get on with this ShIte and it becomes the norm. XXX

Don

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i had my first really bad ms relapse on the 1st january but it was 1992, i woke up completely numb down my left side, we had been out new years eve and i had got very drunk,so i thought i was badly hungover.

i cant believe i have had ms this long.

J x

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The phrase ‘read between the lines’ comes to mind.

Very well put Pat, there’s an autobiography waiting to be written. I hope the rest of your MS journey is very slow and very boring alongside a very active and very exciting life.

Jan x

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Not the nicest anniversary and you’ve made what was almost certainly a very difficult and stressful, not to mention drawn out time look very simple and straight forward.

Take care of yourself.

Cath x

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Same thing .

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It does sound simplistic Pat…bet reality felt a whole lot different.

Pam x

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Life is a bitch, as least you have us for company. M x

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Perfect, well said laugh

Sonia x

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Hello.

10 years ago, I was coming to terms with losing my mum, we were renting a shoebox with an unheated single glazed downstairs bathroom and a steep narrow staircase upstairs. Coming down them was a work of art. I’d been diagnosed 12 years and was still working full time. Now. I’m retired, have a wonderful wife and daughter and live in a cosy ground floor flat which is all paid for. My wife is doing part time work and I have a piano pupil. The changes were all small things and life still has huge problems, but I won’t give up giving the beast two fingers.

Best wishes, Steve.

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