Further to my post yesterday, thankyou firstly for all encouraging and helpful suggestions and support!!
My Neuro said he doesn’t need to refer me on to MS specialist as he feels 100% able to give a diagnosis of MS.
What swung it was the timeline over last 25 years or so that I had written and emailed through earlier this week. He said without this he would have been 98% sure, but with it, 100%. He also said that the list showed evidence of a number of clearly defined ‘relapses’ albeit small ones which tells him I must have had this for “Decades”
So there you go. He’s thinking RRMS but will now refer me on to MS Services where they will monitor any disease progression and discuss next steps.
The main drug they use there is Tysabri a nurse told me, but as that is for highly active RRMS that confused me a bit!!
I’m not sure whether I qualify or not, but he said I will be given full post diagnostic support from a multidisciplinary department within the hospital.
I am under N Staffs Royal Stoke University Hospital - which is a Centre of Excellence for MS and does many Clinical Trials in association with Keele University and they have a dedicated MS Centre.
So in as much as anything can be good news - I feel lucky to firstly have had some many worry free years in ignorance (!!) and secondly, to be under what seems a superb hospital for MS.
The other good news - apparently, for a 51 year old, my brain is in extremely good shape with no lesions, just literally 3 non specific white matter changes. Apparently he would expect to see more than that in the average 51 year old
I’m not sure how I should feel. Feel strangely nothing much at the mo - will probably be a blubbery mess at some point!