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Your views welcome on various worrying symptoms

Hi all. I hate to post here but i have been worrying for a while that i may be suffering from MS. Back in May i started to have a strange feeling in my legs as if they were like jelly. They only felt like jelly when i was sitting down really and when i got up to walk they felt fine, no weakness at all. I then developed pins and needles in my legs and feet at the same time as the jelly legs. At one point my toes on my right foot felt like i was holding them in a fire, this only lasted about 18 hours. Around about a month later i starter to feel the jelly feeling in my hands and arms. At times i would be holding my phone and would feel a jolt go through my hand and would drop the phone. My right hand was also shaking quite a bit. I was then presented with tingling in my face, lips, scalp and chest which was quite worrying. After that i then started getting frequent urination which lasted about 3 weeks only to be replaced with a pain in my testicle and also around my rectum. Next symptoms seemed to be a strange crawling in my back then the centre of my back felt like someone was holding a match to it this seemed to last a couple of days, i have also had back and neck ache for a couple of weeks too. I’ve been to the doctor and they have done a lot of blood tests and all have come back fine. Just wondering where i go from here and whether or not this sounded at all like symptoms of MS? Hope you are all well and look forward to your views. Thanks all

Hi Max, I’m not much farther along than you but the one really useful thing that I’ve got from this forum is clarity on how to keep a symptom diary. My GP suggested this over a year ago so I tried it but before I went to see the GP again a year later, I collected the information into five main symptoms with a brief description of when they began and how long they’d been going on for. I read this out then gave it to my GP who has put it with my notes. Firstly he ordered very thorough blood tests and when they all came back clear, he referred me to a neurologist. I was put on some medication for the dizziness for a while but was taken off it again as it wasn’t helping. Now the next step is down to the neuro…in just over five weeks (and counting!). My other advice is to phone the MSS helpline (number is at the bottom of the page). Keep looking for answers! Good luck :heart:

Can i just ask do you syptoms present all at pretty much the same time?

I have dizziness, tinnitus and fatigue present all the time but they fluctuate, so sometimes I feel almost normal. The muscle twitching, shooting pains and odd sensations are more ‘hit and run’, as are problems typing (thank goodness for the delete button!), mixing words and sounds and forgetting things. Having said all that, everybody’s experience is different so it doesn’t help much to compare notes. My G.P. is leaning towards possible M.E. but that doesn’t feel right to me so all I can do is keep up my symptom diary and wait to see the neurologist. I suggest going back to your GP and asking what the next step is. Hope you get some answers soon!

Every time I’ve had “new symptoms” (I say it that way because I reckon most of them I’ve been experiencing it’s only since being off work that I’ve had time to notice them) I go to my GP so that it’s all on their system as well as a list of present and past symptoms in a list to take to the neuro.

My GP was very pro-active when I came in with my issues and has done everything to investigate them. All I had to say was I’m having these symptoms and there is something not right. I’ve had all the blood tests you can get at a GP surgery and all came back clear- I want an answer. And the DR did something about it.

Just like Reikiblossom my GP isn’t too sure, but has said it’s not diagnosable with my symptoms as they don’t fit under any diagnosing “umbrella” so to speak. But has said if neuro find nothing it’s ME. So leaning clearly towards ME/CFS until otherwise stated.

I’d suggest writing a rough timeline of when these started and if you had been ill or under stress too. Hand it to the DR and ask to be referred to a specialist if they can’t help you with diagnosis.

Don’t give up and I’m sure you’ll get some answers! x

Every time I’ve had “new symptoms” (I say it that way because I reckon most of them I’ve been experiencing it’s only since being off work that I’ve had time to notice them) I go to my GP so that it’s all on their system as well as a list of present and past symptoms in a list to take to the neuro.

My GP was very pro-active when I came in with my issues and has done everything to investigate them. All I had to say was I’m having these symptoms and there is something not right. I’ve had all the blood tests you can get at a GP surgery and all came back clear- I want an answer. And the DR did something about it.

Just like Reikiblossom my GP isn’t too sure, but has said it’s not diagnosable with my symptoms as they don’t fit under any diagnosing “umbrella” so to speak. But has said if neuro find nothing it’s ME. So leaning clearly towards ME/CFS until otherwise stated.

I’d suggest writing a rough timeline of when these started and if you had been ill or under stress too. Hand it to the DR and ask to be referred to a specialist if they can’t help you with diagnosis.

Don’t give up and I’m sure you’ll get some answers! x