Hi there I’m 29 and for the past five weeks I have been really unwell. Flu like symptoms, episode of double vision amd lose of sensation on my right side which cleared, then my right eye vision started to deterorate … feeling extremely tired aching amd really bad headaches amd pressure. Finding it hard to do anything. Also not been eating well . I was put on steriods and my right eye vision isn’t as bad now. I had a mri which shows Demilanation patches of nerve damage . Amd bow I had to wait up to 6 months to see a neorolagist for a diagnosis amd treatment :-/. . I feel so unwell . They said to Try exercise amd think positive could have been worse and how I’m healthy young woman amd will live a long life but feel so unwell and so worried if anything else happens especially as iv got two young girls aswell. I’m finding it all extremely hard .many thanks
Hi there I’m 29 amd past 6 weeks have been awful for me with episodes of double vision right eye vision started to deterorate sensation lose right side flu like symptoms bad headaches amd pressure . I was put on steriods and my eye sight isn’t too bad now. I had a mri which shows Demilanation on patches on the nerves in brain. I was sent away so many times from doctors amd a n e for all of my symptoms amd one day the doctor picked his phone up amd said I need to go up on steriods amd have a mri. It all could of been seen to so much sooner:-/. It’s the waiting which is the worst aswell as your mind goes everywhere on what it could be and you start to think the worst. When he told me I wasn’t dying but had this condition I was relieved abit that I new abit more about what was going on now I just have to wait for the diagnosis and treatment which is a pain . You really have to try stay positive as I got so depressed and low because of all this amd you have to push them as much as possible x
6 months? 18 weeks is the nhs limit. Have they ruled out cns infections? Keep going to your GP if u get any new symptoms.
Thank you so much for replying to me iv been so scared with all this helps just you replying. They said 6 months il look into that il go back to the doctors. What’s cns infections? They have done some bloods but they always normal. I’m just struggling at the momemt it’s all new to me amd feels like they just leaving me to it and all I want now is a proper diagnosis and treatment :-/. X
Oh central nervous system infections they haven’t said anything about that they have done some bloods but not been told anything else just what mri says amd my symptoms x
Hi, looking for some advice. My partners apparent MS attack was just over 2 years ago, she experienced some numbness mainly to one side of her body, and fatigue. This lasted about 2 weeks, however only about 2 days of it was fairly bad. She hasn’t had any other symptoms or attacks since. She had an MRI done back then and 2 lesions showed up on her brain but nothing on her spine. 2 years down the track another MRI was done recently as a follow up and another 2 lesions has come up on the brain but no lesions or abnormalities on spine, however no attack/relapse. The neuro advised it could be MS. She does suffer from constant headaches/migraines, and blood results showed she’s low in iron. Does this sound like MS? Thanks.
Hi, I’ve been experiencing problems for a few years now but because I fractured my spine many years ago the drs was constantly putting my problems down to my #spine. I got up one morning a month ago with pins n needles that are constant n feels like I’m walking on stones, so I saw my gp who took lots of blood tests & because my legs went into a bad spasm n tremors she called the hospital & I was then seen by a multiskelatol Dr who sent me for a complete mri scan skull to tai. This Dr phoned me 7.30pm on the Saturday evening & started telling me the results was not good n also said that my mylene sheath had gone leaving my nerves exposed. So far 2 drs have mentioned MS but I have to see the neurologist urgently. I’m experiencing so many problems which are pointing to MS 
I feel tot8 alone at present & very unsure & obviously not in control of my body n won’t be till I am told officially. Sorry about the messed up message but perhaps I just need someone to tell me all will be ok. X
Hey u should start a new thread
Hey start a new thread
Averill01 Your symptons are not unlike mine and I have been diagnosed with RRMS. The diagnoses by MRI takes a while as they do MRIs about 3 to 6 months apart to determine if there is progression of the condition. In meantime your GP should start you on an intensive dose of Vitamin D as it is thought to reverse demyelination of nerve cords. Please don’t despair. MS is now not the life sentence it used to be and it is not fatal. Hope you get sorted soon. Regards
Sorry but I’m new to this & don’t know how to start a new thread. X
I am new to the site and the diagnosis. Apparently I have had the MS trait all of my life, but just was diagnosed at the age of 50, due to aggressive symptoms. I have had to adapt to a whole life change. At least for now as I learn more about MS. I’m so afraid to do anything. I’m thinking that I need to get a MS Specialist, I have only been working with my neurologist
blurred vision
You know when you are on the forum there is a button above the numbers saying “new thread” you just click on that. More people will see your post that way
I feel i desparately need abit of advice from others going through the same issues. 2016 out of the blue i started getting really horrible headaches, i felt dizzy, couldnt think straight.weeks later andstill havingheadaches i went to see doctor, i was given medication over 2 years covering pain killers to anti epileptic drugs with no relief. Summer 2018 i suddenly had numb legs fromknee down, now the numbness has engulfed my whole body even my face. I now get spasms which can be quite agressive at times waking me in the night, I spend my day being permanently exhausted. Today i still have a permanent headaches and dizziness and vertigo, with numbness. Ive finally seen a neurologist and now ive had spinal mri and having a mri onmy brain tomorrow. I just feel no one understands me, or what im going through because you cant see whats happening.
Lucylu As you have had 2 MRIs by end of this week am sure your Neuro will be able to come up with an affirmative as to whether or not you have MS. Not all the symptons you describe are typical of MS and no doubt that is why both spinal and brain MRIs are needed. Hope you get answers soon. Regards
Lucylu As you have had 2 MRIs by end of this week am sure your Neuro will be able to come up with an affirmative as to whether or not you have MS. Not all the symptons you describe are typical of MS and no doubt that is why both spinal and brain MRIs are needed. Hope you get answers soon. Regards
Lucylu As you have had 2 MRIs by end of this week am sure your Neuro will be able to come up with an affirmative as to whether or not you have MS. Not all the symptons you describe are typical of MS and no doubt that is why both spinal and brain MRIs are needed. Hope you get answers soon. Regards
Lucylu As you have will have had 2 MRIs by end of this week am sure your Neuro will be able to come up with an affirmative as to whether or not you have MS. Not all the symptons you describe are typical of MS and no doubt that is why both spinal and brain MRIs are needed. Hope you get answers soon. Regards
Lucylu As you have will have had 2 MRIs by end of this week am sure your Neuro will be able to come up with an affirmative as to whether or not you have MS. Not all the symptons you describe are typical of MS and no doubt that is why both spinal and brain MRIs are needed. Hope you get answers soon. Regards