HI. I was referred to neurology for a second time in February due to new and worsening symptoms. I’m really struggling now with burning pain, which I guess is due to nerve damage and increased numbness and tingling on the right side. I really don’t know how long I will have to wait 
Just needed to vent. I’m sure you can all sympathize.
Hi Welshlady,
Sorry to hear you are struggling with an unpleasant symptom. I’m not diagnosed, just in limbo with unusual symptoms that I’m stressing about. Hope you get some support soon.
Winnie x
Have you spoken with your doctors or MS nurse about this? Burning is kind of a standard MS thing, but they might be able to give you medications to ease it a bit.
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Yes I’m undiagnosed as well. The neuro discharged me in 2019 by letter as all my mri’s and lumbar puncture were clear. But things have progressed since then, so my GP has referred me again. I’m currently on the waiting list, but the neuros in our area are still only seeing urgent cases at the moment.
I don’t have an ms nurse as I’m undiagnosed. The neuro discharged me in 2019 by letter as all my mri’s and lumbar puncture were clear. But things have progressed since then, so my GP has referred me again. I’m currently on the waiting list, but the neuros in our area are still only seeing urgent cases at the moment. I have made a doctors appt for next Monday. I’ve had so many appts I was hoping to give them a break from me, but not to be it seems.
Sorry about all your symptoms, very annoying and unsettling.
Write your symptoms down and how long they last as it’s often difficult to remember when you have an appointment.
Take care
Jen
How frustrating. Any way you can afford to go private to see a neuro faster? Just don’t give up!
I went privately the first time I was referred to a neuro as there was a six month wait and I needed to know it wasn’t anything sinister. If things really worsen, or if I haven’t heard anything by early next year I will consider going private again. Neurology aren’t seeing anything but urgent cases at the moment. I don’t know if that is different for private patients.
I have so many symptoms, and have had since 2019 with now a few added extra ones. I use an app called Daylio to keep a record of what’s going on.
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