Just joined this form today and looking for peoples experiences of ‘working diagnosis’
I had an episode of optic neuritis in Nov 17 and Im fairly sure Im at the beginning of another episode (although it may be residual symptoms from last episode although im not convinced!)
My MRI showed demylenation of optic nerve and apparently 2 lesions in the brain. Im now scheduled for a further MRI with contrast of brain and spine. They have also referred me to Speech and language as i had an episode of swallowing difficulty x2 in 2015 and 2017. On refection i also had a period of possible optic neuritis in 2012 but it was assumed to be viral and i didnt really link all these things up until recently!
So they have given me a working diagnosis of MS unti they can rule out mimicing illness ie lupus and once they get the second set of scans. She also started talking about the MS nursing team and disease modifying drug treatment.
I guess my query is has anyone been given a working diagnosis and not subsequently been diagnosed or should i assume by the level of detail and referrals that they are fairly sure and looking to confirm diagnosis rather than rule it out. Does that make sense?!
Grateful for any advice and guidance from those who have been through this process.