I’m not really sure what the purpose of this post is, I think I am looking for some advice about what might come next in terms of treatment options (or not).
I was diagnosed with optic neuritis about 6 weeks ago after a fortnight of constant headaches. It was quite severe and I essentially lost all vision in one eye. That was (eventually) successfully treated with IV steroids and I then had an appointment with a neurologist and an MRI.
I have now heard from the neuro (in a letter to my GP) that there are "several white matter lesions very suggestive of demyelination as seen in MS’ and he has asked me to come in for a review. I don’t know how to feel about things, MS was never on my radar. I’ve suffer from migraines and have been to the GP in the past about fatigue and bowel issues but it was dismissed - I’m a bit overweight which seemed to mean nothing I said was ever taken seriously by my previous GP (my current one is not like this).
Part of me thinks I’m totally fine and another part is worried. Part of me is thinking previous things could have been a symptoms, and part of me is saying don’t read anything into that, it could just be that you have IBS and are easily tired and unmotivated. I also don’t want to tell anyone about it (outside my immediate family) since I feel like a fraud.
What happens now, what does getting a ‘diagnosis’ actually mean? DMDs were mentioned at the first consultation as a potential option but I would need to see an MS specialist which my current neuro is not.
Ok, waffle over! Thoughts welcome!