I’m having extreme wobblyness when standing and can only move a few steps at a time only with a rollator. Does anybody else get this and is there anything I can do about it? Linda x
Hello Linda, Like you I to have spms and have the same problem. My suggestion would be to have a word with your MS nurse or gp. I have jut accepted that it is a natural progression of MS but maybe I should take my own advise as there maybe something that could help us. Janet x
Hi Janet. I’m thankful that someone else knows what I’m talking about. Like you I thought this is a natural progression. I’m coming to the opinion that when you reach SPMS stage everyone starts to give up on us and we then have to just accept the whole thing and there is nothing we can do about it. Wobblyness is only one of the many things I’m dealing with at the moment so thank you for letting me know I’m not alone even though this disease is complete b-----ks!! Linda x
Hi Linda
I too get the wobblyness especially when I try to take my first few steps. I sort of wobble on my feet for a good 10 seconds before my foot will even try to lift off of the floor.
I agree that once we move from the RRMS onto SPMS treatment options seem to slow right down. I do feel as if I am being a nuisance when I ring to speak to an MS Nurse these days whereas at the beginning, some 10 years ago there were lots of offers of help.
Guess we just need to wobble on
Take care.
Shazzie xx
Maybe your gp or ms nurse will refer you to the community physio for some advice.
Hi Flowerpot
I see a physio every few months. The stretching exercises do help but they can’t perform miracles eh?
Take care.
Shazzie x