Following from my post about ‘children’ - many thanks for the messages of support.
We face a rocky few months.
Being told my daughter was very ill had a devastating effect on me and at tmes I find it very difficult to cope.
Yet when we tell our children we have m.s. they appear? to cope a lot better than we mgh have expected. This may be because they are too young to understand the implications or they have a better capacity to cope.
Or they may be able to put on a front to ‘satisfy’ but in reality feel exactly the way adults feel when told ther child is ill.
What I am suggesting is that we as parents could unintentionally be deluding ourselves and be avoiding the turmoil our children may be in.
I think zetland that you just need to accept that just because you are totally devastated about your daughter, many of us get diagnosed and just get on with our lives and are in reasonably good health.
I think most of us said our children were worried initially but that now they are ok. You can’t keep saying that they are putting on a front as it’s hard enough to be dealing with being a parent with MS without being told on here all the time that our kids are probably only putting on a front. This is your second thread on the matter and personally, I’m finding it upsetting as a parent with MS that my ability to know my child is being questioned.
We know our children best. I know my daughter isn’t overly bothered by my MS. Our lives haven’t changed. I am in good health. I would suggest that you focus on your own family and the trials that you are currently facing, be there for your daughter and her family and let us manage our own illness with our own families in our own way.
you hit the nail on the head tracey,when a mother learns their child is ill we always feel guilt,my son has had lots of tests for mS so far they are inconclusive,but so were mine at first, when he first started been ill and showing MS like symptoms,the guilt i felt was unbearable,i couldnt cope at all at the time.