Hi Flowerpot, I agree with what you are saying, let’s see what other’s, if anyone has to say, Take care.
Jean x
For people withSPMS who still have relapses SIPONIMOD has been approved by NICE but the conditions are fairly tight.
Look up the Chariots trial for those with EDSS scores of 6.5 or more (basically in a wheelchair) this is using Cladribine in a different way.
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Looking at the line graph for MS progression, I think SPMS comes to both RRMS and PPMS, later on as time passes.
Hello @Flowerpot
I just noticed one of your earlier posts. I’m sure I initially joined the MS Society forum about the same time as you or it might have been even earlier? I think I remember there was a MS Teens section b4 but, I did drop off the forum for quite a while as my MS was benign in the early years.
I think I read somewhere the body actually has a natural stem cell function, it’s not enough to repair all the damage multiple sclerosis does to the body though.
I wonder if stem cell treatment is permanent or is it just like laser eye surgery, your eyesight will still deteriorate over time, even though you’ve had it done previously?
Regards,
JP