Hi, I’m really interested in being offered/trialled/prescribed & any other possibility to receive Ocrelizumbab.
However, I’m not sure of the facts, and accept I am ill informed about this apparent wonderful breakthrough for PPMS.
I understand it is the first proven treatment for PPMS, it is accepted by Europe, except the UK. The opportunity has been dismissed by UK’s NICE organisation. NICE are not allowing it to be prescribed to PPMS patients! There may be some opportunity of Ocrelizumbab for RRMS patients, even though there are already many DMDs for RRMS.
Personally I was diagnosed with M.S six & half years ago, aged 59. This was defined as PPMS nearly 3 years ago. Significant deterioration has occurred over the past 4 years.
Can anyone offer more information about how I could possibly apply to receive this treatment. A proven treatment of PPMS disease slowing, stopping, repairing PPMS damage? Or have we UK residents with PPMS been ruled out completely of any chance to receive the promising Ocrelizumbab treatment?
Thanks, Chrissie x