Im not sure why I always cry when my family help me out went shopping yesterday with my husband and me just to get me outta the house came home i was so outta of it went to take my jacket so off we have this foot stool went to sit on it and almost feel off of it my daughter of just 15 caught me before i hit the floor good I love my family. sorry bout the rambling just in a getting use to how this disease changed me knew i had it for years but never affected me untill now. Thanks for hearing my piy me story.
Hi Bea, There are thousands of people just like you today. As MS chips away at bits of our life itâs only natural to get feelings of frustration, resentment, anger and depression. We donât have a good way of being able to express these feelings because weâre always being told to âDonât make a fussâ or âCheer up - it may never happenâ. MS makes other people feel uncomfortable and we are always trying to find ways to hide it. This means that we are bottling up our feelings, but sometimes they overflow, like a pan of boiling milk. We canât help it. Itâs natural and healthy to get these things out of your system so donât try to stop it. It takes a while to adapt to the new you. Best wishes, Anthony
Thank ou so much Anthony you said it perfect im doing my best to get use to the new me its just so hard but thank you for udersanding me my husband is a good man but doesnt really understand it as you said and he may never but thats okay as long as he is by me.
you are entitled to as many pity parties as you want or need.
i plan an occasional pity party and it starts off fine but after a while i get bored and have to get out of my pit and sit with my husband and the random drunks he brings home with him, have a drink, a chat and a laugh.
so enjoy the pity party but when youâve had enough - go for it!!
Lots of wise and experienced words above. Everyone has to try and deal with the horrid issues that MS chucks at us. Some days it might be easy to smile ,laugh and shrug, whilst other days can feel like being in the deepest and darkest pits. If we can share some of the good or bad stuff with a loved one (whether they fully understand or not) it makes things a bit easier knowing that someone cares.
It can also be useful to tell it like it is here in the forums, because there is a high chance that people here will understand and not judge.
i can imagine how it feels to have your daughter âsaveâ you. We try and protect our children from the bad stuff. Iâve got to be honest, although I miss mine (they are both at uni) I am glad they are not at home, just so they donât see my âbad momentsâ.
ok, as I am meâŚ
Maybe you did a little too much. Itâs great that you got out. But for you it was too much ? So next time do you need a coffee ?
Do you need a loo break ( 5mins sit down). (Would seem normal to most men) lol
âor, just a âtreat coffee/ coke / beerâ somewhere on the way home to recover.
P.s. I work full time, but a trip to âtownâ was too much, but, I have found a way ! I go for near lunch time. At the point I start to feel tired I say Iâm starving. This results in half hour sit down. We only do 2 hours parking so not too much more walking around. With no need to sayâŚI feel shit
I think we all try to âprotectâ our family and friends and that is difficult at times as we are to some extent âhidingâ ourselves from them and this is emotionally draining. I sometimes wonder if we take too much on ourselves in presenting a false persona where we appear all singing all dancing whereas in reality we are feeling totally crap/unwell. If we âhideâ our real feelings where do we get support from because we appear not to need support.