I am confused who I should call. I am in quite a bit of pain It is always in my feet,and more so in my right hand. Now has gone up to my knees.It is worse at night,m and am having problems sleeping.Who do I call for painkillers, as the stuff off the shelf does not seem to be working for this pain.Do I call the ms nurse, or make an appointment to see the local gp?
The choice is yours! Who do you get along with best, or have the most faith in? Or being more pragmatic about it, whoâs it easier to get an appointment with?
Iâve got to say, Iâve never bothered with the MS nurses. I donât know them, they donât know me, and itâs not convenient for me to get to (though more accessible since they moved hospitals, as I donât have as far to go).
I have found the GP quite helpful in prescribing things when the hospital either didnât have any ideas, or prescribed stuff that didnât work.
For example, I found quinine helped with cramps, even though the hospital had never suggested it, and it was my GPâs idea.
I donât mean to sound anti MS nurses - I canât form an opinion either way, as Iâve only ever been offered âa cup of coffeeâ with one - which I certainly didnât think was worth a trip all the way to the hospital!
I just donât think itâs a critical decision who you approach first, and you wonât get âtold offâ for picking he wrong one. GPs are licensed and qualified to treat everyday symptoms, and I have found that in many ways, the hospital expects them to. Not all day-to-day management needs input from a specialist.
GP first - because this is probably the quickest route
MS Nurse second - because unless it is clearly neuropathic pain, he/she will suggest the GP route. If it is neuropathic pain, then the nurse will probably request that the GP prescribe anyway.
I have found that asking for a telephone consultation is teh quickest way to get a GPs attention.
Yep, agree with all the above - and the reasoning.
Telephone consultation is often the quickest. Iâve sometimes tried to get a GP appointment, only to be told: âHmmm, soonest sheâs got is a fortnight?â
Hope your phone consultation goes well. My MS nurse told me when I last saw her in December was that if I thought it was MS related to ring her first at the hospital before GP and they would get me into a relapse clinic to see either MS nurse or Neuro asap. This is a new strategy at the hospital. Obviously if it was not MS related as such ie flu for example then go to GP. I have not had to use this new strategy yet touch wood but it makes sense as at the hospital they have more knowledge of MS rather than my GP- however I am also lucky that my hospital is 10 minutes drive away and I can still drive. I guess if I lived an hour away it would be easier to go to my GPs.
I was advised of another option, which is illegal and begins with C, it works for some people.
Hi Ronin,
I was at a party a couple of weeks ago, and was give some. I slept really well, and the pain nearly disapeared. I have had another couple of goes. Downside is I already feel woolly headed, and hard the feeling of being more out of it.
Upside is it has made me take realise how much discomfort I feel all the time, and has made me do something about it.
Yep, agree with all the above - and the reasoning.
Telephone consultation is often the quickest. Iâve sometimes tried to get a GP appointment, only to be told: âHmmm, soonest sheâs got is a fortnight?â
âI donât mind phoneâŚâ
âRight! Sheâll call you lunchtime!â
Tina
Hi Anita,
I took your advise and called my gp this morning. I said for a telephone consultation, which was so much easier then trying to get an appointment. The doctor phoned back within twenty mins. I have a prescription ready to be picked up for codeine. I am going to phone my ms nurse now, as has been going on now for more than two weeks. x
I think stress has bought it on. I went to the opening of the new ms building. For me this was a mistake, I should have left it for a normal day. My 10yr old sonâs school was on a teacher training day, so took him with me.He kept asking me âmum are you going to be like thisâ. All I could say was âI donât know, ms affects different people in different ways. I am not to badly affected at the moment and it could stay like thisâ
Itâs amazing how if you say you donât mind a telephone consultation, they suddenly seem to be able to pull rabbits out of hats, even when theyâve said they didnât have anything for days.
I suppose they just wait for a no-show, of which there are many, and use the slot to phone somebody.
Whether the codeine works or not depends on whether the pain is neuropathic (nerve) pain. Not all MS pain is, so itâs definitely worth a try. I have found codeine the most effective painkiller I have in my armoury, so I can only conclude my pain is mostly non-neuropathic.
Iâve just done a one month trial of Gabapentin, but it did diddly squat, and I was still resorting to the codeine anyway, so for me it is the best. I get a little sicky and headachy if I take it too frequently (but still within prescribed limits), so itâs a bit of a balancing act between enough to help, but not enough to cause the headache, but it still beats anything else Iâve tried.
I went back to ms therapy centre today -without son. I still felt nervous, but not as bad as first time. It was no where as busy today. i was congratulated on having the courage to go back, as I looked like a âdeer caught in the headlightsâ Going back next week for a pre assessment next week to see what treatments will help me.