Hi,
I could really do with some guidance as I seem to be going round in circles with the medical professionals making me feel like its all in my head. “Using terminology such as maybe your hypersensitive”, “maybe your ailments should sit in a bucket of other things like fibromyalgia”, “we have hit a quota of MS sufferers where we just give this diagnosis to freely” .
Over the last 5 years I have had a number of issues which have been looked at as individual issues, extreme fatigue, muscle & joint pain across my hips,shoulders and neck, pins & needles, cramp, restless legs, incontinance for bowel and bladder, brain fog, swallowing problems, eye problems with double vision and floaty bits and the list goes on. The doctor I saw a few months ago said it all look like it pointed to a possible MS issue and referred me to a neurologist, who didnt want to know what meds I am on and after touching my nose and standing on one leg said she didnt beleive it was MS but could do a scan but it would be a number of months from now and proceeded to mention it could all be just FND and hypersensitivity.
When I challenged this saying my doctor had referred me as he had a patient that after 10yrs has just been diagnosed saying why is MS so hard to detect or gets dismissed so easily, she exclaimed that was years ago and technology has moved on which is why they “assign symptoms to other buckets”.
I am at a loss of what or where to go now, in the past when I have had surgery over the years for gall bladder etc I didnt need pain relief as I have a high pain threshold. However these last several years has been difficult and the whole situation is getting me down and now feel I should just shut up and put up.
Any advise or guidance would be appreciated even to to clarify I have or havent gone mad!
Joanne
If something flares up or if you get new symptoms go back the GP get it all on your record properly so there is a paper chain of evidence.
Still have MS