I was diagnosed with RRMS on 27th April. I’m starting on Avonex on 18th July (which is sitting in my fridge looking at me!!). My main problems at the moment are muscle pains and fatigue. It makes me feel pretty awful at lot of the time. I’m currently taking 600mg of Gabapentin 3 times a day. I work full time and it’s a fairly demanding job.
My question is: where or who do I ask about help with the pains and fatigue? Do I ask my gp or the MS nurse? We’re going on holiday to the Lake District on Saturday and whilst I’m really looking forward to it, I’m worried about how I’m going to cope. The fatigue just kicks in at anytime! I’ve got a Blue Parking Badge now which helps a little.
I’m finding this all a little scary at the moment. Normally if you’re unwell, you eventually get better. It’s a lot to take in to know that you won’t get better. I’ve got an appointment with my GP on Tuesday to ask about the fatigue etc but I’m not sure whether it’s worth keeping. I feel like I have to prove that I can still do everything but feel so tired most of the time. I’ve been trying to lose weight and go to the gym but the tiredness is not helping at all.
I’m sure I’m having some sort of relapse at the moment, I had pins and needles in places where I’ve never had them before and the tiredness has been worse over the last two weeks or so.
I guess I’m just not sure of what’s happening or where to turn to at the moment.