Where has all my positivity gone?

Everyday living
1

After being diagnosed in May 22 I have been really positive and upbeat about my diagnosis. I’ve even started a vlog! But today has been a horrible day. I just feel fed up of being the disabled person. I’m getting on my husband’s nerves. I had to go to a very pointless and boring meeting for work and I’ve just been tearful all day. My symptoms seem to be worse today and my husband can’t understand why they have come on so quickly in less than a year. I’ve explained to him that that’s how MS works but I want to find the positive me so I can keep him positive. Thanks for listening

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2

Aren’t you the same person who had Ocrevus today and it went brilliantly? Which is it?

3

My infusion was last Thursday and yes I did feel on top of the world then. I’m sure she will return. Thanks

4

Please cut yourself some slack here. You had a life-changing dx a few months ago, and your husband did too, and you both have a lot of work to do to get your heads around if and that is tough stuff and just not easy. Don’t be down on yourself for feeling down sometimes, and that applies to both of you. I wish you well.

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5

Have you checked behind the sofa ?

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6

Hi I’m not tearing you down or anything but why have you started a vlog? Just curious, so early on and so little experience

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7

Just to document my journey with MS more like a diary of the journey than anything. I had a book published about my anxiety journey (for many years from 1997 onwards) and I’ve kept blogs of my physical journeys like around USA. So this was just something different. a journey of a thousand miles starts with a single step. I started my blogs from arrival so this is just the same. I am uploading one this weekend about getting my diagnosis

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8

Ok interesting. It just came across differently but good luck and if you can, enjoy the journey.
Sam x

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9

American positivity vs British stoic reserve?

10

We can be positive too. I have been for four months everyone has a bad day wherever they live or wherever they come from. It’s about being honest and owning your emotions. I make no apology for that. I thought this was a safe place to express yourself and I will continue to do so unless a moderator tells me I am wrong to express my feelings both good and bad.