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When !!!

When did this ppms forum get so much ‘bigger’ it seems to have happened overnight,not that its a bad thing,the more the merrier,its always good to hear from ‘newbies’ it just seems to have ‘blossomed’ overnight or is it just me lol.

J x

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I’ve been a member for a few years and write lots of posts for a day or two, and then no posts for ages. There are a few of us who pop in and out but not very regularly.

The site is great though and the forum has helped me get from down in the dumps to the top of the world many times.

Chrissie x

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Hi Mrs J

I want to say ‘the more the merrier’ but as it’s a club that no one would choose to join, those words seem inappropriate, but I am sure you all know what I mean.

Hope things are easier for you, take care.

Pam x

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Hi pam, i wish i could say things were easier,in fact they have got much worse, my beautiful little grandaughter was diagnosed with autism last week,and i cant put into words just how devastated we all are.i thought we were prepared for the diagnosis, but its hit us like a ton of bricks.

J x

Mrs J I’m so sorry to hear that she was diagnosed. I hope that this means that she’ll get lots of support. Your poor family must be so upset too. There’s not much we can do but remember we’re all here if you need to “talk”.

Take care

Cath x

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Thanks Cath, the team that diagnosed her, are all very good,the specialist health visitor rang me and was on the phone for over an hour with me, as i was too ill to go to the hospital with them as the assessment was over 3 hours long,my partner went with them though,and he said they were really supportive.Hes holding us all up even though hes upset himself.

I really am not coping with it,i was already in a bad relapse after being so ill at xmas,so me being stuck in bed 24/7 is hell, i jsu want to go to sleep and not wake up.

J x

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Hi Mrs J

I am so sorry for you all, but now DX is definite, that hopefully means that support will be in place before she goes to school, which will be a benefit.

If you need to talk, we are all here willing to listen, even if we don’t have any answers, it’s good to get things off your chest, take care.

Pam x

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Thanks Pam.we are getting support,and a 1 to 1 sen support is being put into place for her at nursery, we are just coping the best way we can.Shelly on here has been a great help to me,trying to make me feel more positive.

But its like everything else in life we will have to find our way through,which i suppose in time we will do,but i am heartbroken just now ,i really am.

J x

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Hi J, just as I was reading through your post and replies…I heard there is a programme on BBC tonight called the A word.

Dont know if it will help…hope it wont upset you. Do you think you`ll give it ago?

Feeling for you hun.

luv Pollx

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Hi MrsJ

People with autism can be happy people as well. I don’t have anyone in my family with that trait but my wife and I watched all of The Autistic Gardener last year. We found it really positive and uplifting.

I’d like to add that although I didn’t choose to be one of The Gang, I am quite proud of who we are and what we do.

Anthony.

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Hi Poll,i watched ‘the A word’ it upset me when the mum was upset because he wasnt invited to any parties,it breaks my heart knowing what we are all going to have to face.

J x

M

Something strange happened and writing didn’t show up!!! Meant to say morning, and although none of my family have been diagnosed on the autism spectrum, I have many friends whose kids are, mostly boys I have to say, so not so familiar with impact on girls, which may or may not be different, with mosts of the boys I know it seems to mostly affect their social interaction and they often deal with it with a lot of aggression-hence don’t know if girls the same. Does that make any sense??

anyway, the point I wanted to make before I waffled on, is that the kids I know are usually high achieving academic wise, and struggle with social interaction BUT they each have friends and are definitely included in school/social life, and are actually very popular despite their very difficult behaviour sometimes. Strong parenting helps and there are many support groups out there, talk to people in a similar situation. Just like this forum, it helps. Try not to think of this as a bad thing, it’s not, your granddaughter is still your beautiful granddaughter and she will be who she will be, she may just not be able to communicate in the way you expect.

waffle waffle, have a lovely day out there in MS land people xx

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thank you Slug,for your kind words.my daughter is going on all sort of intensive interaction courses and shes going to a group to meet other newly diagnosed families too,and you are right my beautiful little cute, funny grandaughter will be loved and cherished for who she is.

Thanks again

J x

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Yes Anthony you are right, the team that diagnosed her said what a happy little girl she is and very lovable too,and they said she has a lovely family to guide her too,which i thought was nice.

j x

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l watched the first of the A Word series last night. lt seems to be well researched - and will be the sort of drama that leaves us all knowing more about autism- and its effect on families. We all need to be educated on the subject. lt was pointed out how happy and loving the little boy was - and very clever in so many ways.

MrsJ little grand-daughter has a very loving family to give her a wonderful life. And this little girl will be such a comfort to her special granny.

l have two 'baby-grand’daughters - age 3 and 1. And like MrsJ - just wish l was more mobile - so l could do more with them. Although they both seem to think l am special too- with my stair-lift - rollator - and Tramper scooter. All the best grannies have these of course.

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Hi all, just want to comment on being a grandmother and not being mobile.

Of course I would love to play football etc with my grandson who’s nearly 11. I remember once a few family members were playing footie in a garden and my grandson said to me ‘You can’t play Nana because your legs don’t work right’ Talk about speaking the truth!

However you can still develop a special relationship with your grandchildren. I go out of my way to chat with him about what he’s up to. He enjoys reading so I chat to him about what book he’s reading. When we’re alone together I put on a film that I know he’ll like.

These days everyone is so busy that a lot of kids miss out on just having a chat with an adult or just hang out and sit and watch something & I think we can fill that gap nicely.

We can offer a quiet, supportive space which all kids need.

Hope this helps you fellow grandmothers.

Pat xx

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Thanks SJ ,your right my special little grandaughter has a special grandma who loves her to the moon and back,and always will.

J x

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you are so right Pat,we make up for it in other ways.

J x

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Oh Pat, you are so right. Whilst I wish, same as everyone, that I could have pushed my grandchildren in the pram around the park, or run around with them, it wasn’t to be.

But, hey I sure made up for it in other ways, they loved nothing more than sitting on my lap in the wheelchair and having rides, and especially cuddling up to me while I read a story.

With the older 3 now 17, 15 and 12 they sit with me, and we have wonderful conversations about a whole host of subjects, and the youngest now 7 reads the story to me now.

We are all ‘special’ Nannies or Grannies (whatever you like) just as all the Grampy are as well, and all our grandchildren are ‘special’ to us, whatever our role is, enjoy it all.

Pam x

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