I have tried to stay on my feet my old doctor before she left always said use your legs or loose your legs, so i have kept on them as much as i can.
However, now like yesterday i took dog to vet with my care worker a 2 minute drive she drove. I took my tri wheeler so i could walk into the vets as i thought it would be good exercise.
I woke up in the worse leg pains, spasms pins and needles and first time for a long time the worse pain in one hip it woke me up. I struggled to go from the bed to my commode. I could barely walk. Every time now i go out and try to walk even for a short distance i end up in this state.
I am getting beyond depressed. The pain is bad too nerve pain which my 2mg diazepam isnt even touching. Once i wake up i struggle to get back to sleep.
I keep looking at my little electric wheelchair but my guts is telling me no don’t do it. But not sure i have the strength anymore to keep doing this. My PPMS has been so much worse since i lost my husband and moved which is all understandable, but i thought now i am in better place i would show improvement but lately i feel worse and worse.
I think i will ring my nurse today if she is there and have a word. Sorry to load you with this question i know you all have your own things to deal with. I just having such a bad time of it, and i am really trying my hardest to deal with it. I have to see the blood nurse tomorrow as they said my last bloods were borderline on my sodium (which they have been on and off for years), and have to see the optician again as i suddenly developed in growing eyelashes which are horrific worse then the pain of ON. so dreading going out, but have decided i am taking Betsy my wheelchair i am not strong enough to do two appointments on my pins.
If you have migrated to a chair what made you decide would you mind answering me please? xxxxxxx