Hello everyone. Im hear as a last resort because im at a loss as to what’s going on with me. Im 51 and female with a lower back problem and lots of weird afflictions. I was diagnosed with a right foot Babibski sign about 6 years ago at Royal Free and Stanmore. My reflexes are very brisk. I also have foot drop on the same side. M y right thigh is numb. 5 years ago I developed Trigeminal Neuralgia on the right side of my face. It returned 4 years later then 8 months later. The most hellish pain imaginable. I have blue feet and thermal imaging shows a Raynuds type issue. My right lower leg has lost muscle tone and sometimes I get a sudden twitch and my leg will kick out.i also get awful cramps in the right leg. Not normal cramps but really disabling. It I point my foot or bend it it twists and is painful. Just putting a shoe on starts it off. If i stretch it happens but never the left side. For a few years I’ve had painful imaginary burns or pricking. Usually my legs. I feel like I’ve been pricked or bitten. The pain is real for a moment, I can touch the exact place then it’s gone. Icy cold sensation is fairly new. Momentarily I set a very cold spot anywhere. My knee leg or foot even my bum. I used to get a warm feeling in my feet like I’d stepped onto spilt tea wearing socks. I also have restless legs…and arms? I also struggle with my bladder being too weak. More recently I’ve been diagnosed with Phantomosia. I keep smelling an awful smell thats not there. I still have ny normal sense of smell but now this extra one. More worryingly I realised that ive been having this longer than I thought. Some nice smells to but mostly one disgusting smell. My hearing is a bit confusing too. I also have a vibrating feeling along the instep and heel of my right foot. 3 weeks ago both my hands had really powerful pins and needles for less than 30 then return to nornal. When I wake up in the morning my legs are very annoying. I can’t walk properly and stretching helps to loosen them up. Im very active and not overweight at all. Im now asking questions because the snell issue is doing my head in. I feel stupid because its imaginary. Im constantly looking for a smell. I’ve isolated myself now because I must be a pain to others. I’ve tried nasal sprays but nothing works. Its getting me down because no one else has such odd problems. My gp seems uninterested so im at a loss. I never considered Ms until the phantosia started. Now ive looked further and am beginning to think it needs further investigation as I have trigeminal etc. I don’t want MS and am not convinced I have it but to see a dr for so many small things is daunting and time wasting. Id like to hear what others think. Thank you
hi sara
have you been referred to a neurologist?
it sounds neurological to me.
you can self refer to the bladder and bowel clinic.
do try them because they give excellent help.
carole x
Hi Sara,
If your GP won’t listen to you - change your doctor, preferably a female.
Instead of seeing her for lots of different symptoms, make a list, like you’ve done here, and tell the GP all your symptoms in one go. They won’t be so easy to ignore that way.
Regards , John