I’m new here. I’ve emailed a query to the support line but just realised it could take five days for a response, so thought I should try my first post here.
I’m currently under investigation for MS. I’m 59 and so a bit ancient for diagnosis but, looking back, there may have been things happening which weren’t picked up as significant or just attributed to other conditions.
My MRI (which I had in March after seeing a neurologist about what I expected to be peripheral neuropathy as I had burning/tingling toes and feet) showed “multiple subcortical white matter lesions, some being in periventricular location. There is also a focal white matter lesion identified in the right pons. Overall these findings are in keeping with possible inflammatory demyelination”.
I’ve had a lumbar puncture which was normal.
I’ve had slight pain on movement of my right eye for a couple of months (and had a previous brief episode of this) and over the last few days blurred vision in this eye. I’ve just had severe viral conjunctivitis in this eye and expected the loss of vision to be related to this. Yesterday my optometrist said he thinks it’s down to optic neuritis and has referred me urgently to opthamology.
Due to see my neurologist on Monday. I know he wants to do another MRI with contrast and he doesn’t yet know about my eye problems and other recent symptoms (most notably kind of electric shock sensations which I also had last summer). As it’ll probably be another 5 months before I get to see him again, I want to be sure I make the best possible use of the appointment.
What should I be asking/discussing?
I’d really appreciate any advice you can give.