Sorry I haven’t been on here in a while.
I’ve generally considered myself quite lucky with my MS.
Here’s a bit of history -
First episode of Nystagmus in 2001 aged 18.
DX in 2005 (ish) with bout of Nystagmus/L’hermittes sign aged 23 (whilst pregnant with my first child).
Four children later, now aged 32, 3-4 bouts of Nystagmus, L’hermittes sign, mild fatigue (which I mainly put down to being a mum of 4 and being a full time student or working full time).
So here I am on my last day of a 5 day course of oral steroids after developing symptoms that I’ve never had before the week before last, namely numbness/weakness/pins & needles below the waist (left foot, lower right leg & foot, upper right leg and ‘saddle’ area).
I don’t even really know what I want to ask, as I know there are very few answers, but what do I do now? It hasn’t gone away or even seemed to have improved with the steroids. I am finding it very difficult to be able to speak with a medical professional about what to do/expect/hope for - I suppose some words of experience or support would be a start.
I soooo do not have time for this, I have so much to do and need to get on with things but I feel I may need some practical help.
When will this go away???
Sorry for terrible writing and probably making absolutely no sense, I just don’t know where to turn