Last April, I had my first CIS, following my MRI the neurologist said I had a 90% chance of Ms. Almost a year on, my symptoms are still the same. The tight pain which feels like my ribs are being crushed brings tears to my eyes as well as the pain across my collar bone and down my neck, that’s just for starters!!
My results are now in after a month, stating some lesions have got smaller and no new ones, that’s good news. In view of this I do not meet the criteria for Ms, so see you in 6 month’s.
I know I should feel happy, but I feel angry in that you don’t have Ms so just carry on. No help or advice to help with the symptoms I am having. Do I just have to get on with it and hope?
I work full time and the fatigue can be so bad, my employer allowed some adjustments pending the results, now no adjustments as I don’t have ms.