I wanted to share what has been going on with me and possibly get some opinions from people on here.
A month ago, the left side of my face and scalp area went numb. It was just the cheekbone area at first and within 48 hours it was the whole left facial side and scalp. I thought at first it was probably my TMJ acting up so I visited the dentist, and he was like yeah it is probably your TMJ causing you some numbness. He referred me to an ENT specialist. The following day, I felt half my tongue had went numb as well and felt very odd so I decided to go to the ER. They checked me and immediately wanted to rule out stroke and a possible aneurysm. The on-call neurologist suspected MS and admitted me so I could get a brain MRI done asap.
The following morning, my brain MRI showed one bright active lesion in the brainstem. The neurologist ordered a spine MRI, and a lumbar puncture to rule out possible infections and check for oligoclonal bands in my CSF.
My spine MRI was clear, and my CSF came back negative. So the only thing they found was one brainstem lesion. I was given a dose of 5000mg of IV Methylprednisolone over a course of 5 days. I got horrible heartburn, fatigue, muscle weakness, and slight depression. After coming back home for a few days, I got acute gastritis, I couldn’t even keep fluids down, and had to be hospitalised again. Gastritis was probably from the steroids damaging my stomach lining.
As of now, I’ve been home for around 2 weeks now, I have a follow up MRI in about 1.5 months. My neurologist at this point said I might just have CIS (clinically isolated syndrome), because she does not see any other sign of MS to diagnose me yet.
I’m personally very confused because I’m just mentally waiting for a second attack to confirm MS. I have a bad feeling I do have MS, been googling lots of MS related statistics as well. All of them state that if you have CIS, and a brain lesion is present, you’re basically at a 60-80% chance of developing the disease. That scares me, A LOT. I’m just 27 years old so thinking about the future scares the hell out of me.
Everything happening soo suddenly just flips your life upside down.
TLDR: CIS case with one brainstem lesion, scared I’ll be diagnosed with MS soon.