Hi, I’m new here…. Not sure if I’m allowed here as waiting for diagnosis.
Start of the year I had pain and tingling in my legs, in March my left leg stopped working, been seen by orthopaedic consultant who has scanned everything and told me yesterday I need to see neurologist as could be MS. I’m already under a neurologist for Epilepsy but earliest I can be seen is end of October.
I’m at a loss. I now hurt in every joint in my body, I sleep about 2 hrs a night as pain keeps me awake even if I take pain killers or sleeping tablets. I’m losing the sight in one eye, can’t control my bladder, can’t walk unaided, lymph nodes swollen and drs know all this but say wait until neurologist see me. I live alone and at a complete loss at how I’m going to live. I have been off work for 5months already and pretty sure my job will be gone soon.
Sorry for the long rant I’m just so alone and need to cry into the void.