Hello everyone, I’m new to the website after being told to sign up by my very understanding boss.
I will try to keep this as short as possible!
About 6 years ago now, a work colleague was diagnosed with MS. Her symptoms came on reasonably suddenly and quite dramatically. It was awful to watch her deteriorate.
Fast forward 5 years and there’s me, for the 100th time, at the doctors for various symptoms. From bowel pain, weight loss to dodgy joints and UTI’s. The doctor always treated everything separately - there was never a link made.
Fast forward to about 1 month ago and I appeared to have almost all of the initial signs of MS. I tried to put that thought to the back of my mind, thinking that it’s impossible for me to have it if I knew someone else who has it.
The last straw for me happened about 2 weeks ago, when I went to the opticians for double vision. The optometrist said my eyes are healthy, but the muscles aren’t working together - I needed glasses with prism. I knew then that I wasn’t right and that I needed to push my doctor again for a referral (I had previously brought it up, but was ignored).
I saw the doctor and, although she was convinced it wasn’t MS and more likely to be psoriatic arthritis, she referred me to Neurology - warning it could take up to 18 weeks to see someone.
Since then my back is in chronic pain and I can’t walk without looking vaguely drunk! I was also convinced that my mattress was broken because I’ve been waking up in more pain than when I went to sleep.
I also (in the last 3 days) have new tingly sensations in my hands and face that feel like a loose hair tickling the skin.
I’m not sure if I need to speak with anyone again about new symptoms, or if I simply need to wait for my referral appointment?
I guess I’m just looking for some guidance or advice really - I just feel a bit lost.