My hubby was diagnosed in 2003 and it has been a slow progression for him but in the last year his hands have severe tremors which makes eating very difficult. We now have a carer 1 hour a day to help feed him as it would be difficult himself.
I think the worst of it is if you work and taking time off to be with a sick loved one is not always easy. I have just had to take a week off work as Annual leave while my hubby was rushed by ambulance to hospital. As it is an unpredictable illness you hope and pray that you don't have too many of these episodes.
I would love to know how others cope when they work and what do they do.