I’ve been in a relationship with my partner (who has RRMS) for two years, and we moved in together officially this summer. My partner is heading towards his first relapse since we met, and going downhill. His sleeping pattern is all over the place, there are nights when he can’t sleep, wakes up after a couple of hours, or conversely sleeps for twelve hours - there’s no consistency at all, leaving him sometimes nocturnal because he can’t keep to anything. It’s exacerbated his episodes of depression (down to the benefits system) as we rarely have a day we are able to get up and go to sleep together. He tremors a lot and his balance is failing - plus I’m pretty sure there’s things he isn’t telling me to try and stop me worrying (it isn’t working, had you noticed?).
I’m hoping for advice, really, as I’ve essentially become his full time carer (I have fibromyalgia myself and am unable to work either). I’m talking to Citizen’s Advice and our MP on the money issues this obviously causes, but I wondered if anyone had advice on a similar situation as it’s weighing heavily on my mind and amid trying to deal with the various out-of-house issues, housework and supporting my partner, any help is welcome.
Thanks in advance.