I have ppms and have ‘just got on with it’. Its life and i gotta deal wìth it.
So, why am i here?
Ive been ill recently and MS has seemingly left me much much less able.
For example i havent stood up now for 36hrs and slept in my wheelchair last night (a hotel whosr bed i couldnt get out of and had to be manually lifted to the wheelchair. Rather than repeat it on the last day of holiday break i told my partner to help me get comfy as i was staying where i was.
I haveaurethral cather and have been waitìng for word ofsurgery for a supra pubìc one since Oct2024.
Well (sorry about post length) now imiving in fear of having to get up to poo.
Im thinking stoma. It makes total sense and now I dont know what the heck to do to get one.
Any words of advise or prior experiences are very very welcome.