i have had ms since I was 19 and am now 27. I have come to terms with things but my ms is really like a spinal injury and need some advice! I am left with not being able to move my legs which is fine as I am in a wheelchair, I have problems with my bladder but have a suprapubic so it’s fine BUT I have bad bowel issues. I suffer from the normal constipation and impaction which I use to be able to handle as I could transfer onto a toilet. I am unable to do so well I can but not get my pad down and dress up so it results in me now wanting to go out or having accidents!
i am using peristeen but need help from my partner which isn’t ideal and iv run out of ideas. I know when I need to go just can’t unless he’s there so I can transfer on to the loo and help me pull my pad down etc. I’m really contemplating speaking to my dr about a colostomy bag…has anyone got one and if so what’s your experience with it?