Hello everybody, I am new here so I’m not sure whether I posted it in the right place but I hope you don’t mind.
I have had MS since 2001 and now am in a wheelchair full-time. To cut a long story short, I want a stoma bag fitted. Yes, I want one. I may be crazy, but I am sick to death of my life living around pooing. I’m either constipated, have diarrhoea or just in the middle. I regularly am sat on the toilet for up to 5 hours a day. Because I’m in a wheelchair and can’t stand at all, I am unable to use even disabled toilets because I can’t transfer other than with a hoist.
I don’t go out in case I need to go for poo. I have been caught short before and ended up sat in my own poo for two or three hours until my husband gets back from work. I don’t feel able to visit family of friends or go out anywhere for the day. That is why I want a stoma.
Has anybody else had one just because it would be such a convenience for my everyday life and not because it’s a medical problem that forces it
I already have a suprapubic catheter fitted and the convenience that has brought is wonderful. Has anybody else got both bags fitted?
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I was hoping someone would answer this query as I’m interested in answers. I use Peristeen each day which takes away any worry Maybe you could try this?? However I find it hard work and I’m sure there’ll come a time when I can’t do it.
Hi, I’ve had MS since 2007. As the pills increased I had to start taking movicol, up to 8 sachets a day!! I then tried everything possible. I was happy with Dulcolax tablets, one a day and I knew I’d definitively get to go, but that was a game of chance making it to the bathroom on time! I finally found Sodium Picosulphate. 1 or 2 5ml dose’s at lunchtime and it was a winner.
However, in June this year my colon burst and after lifesaving surgery I woke up with a stoma bag. Found it absolutely repulsive and eve though I change it every other day it still causes so much stress and anxiety. And it does randomly burst - a very negative moment followed by a bucket load of tears.
I do understand the simplicity of it - not always having to think about when will I go to the loo and what to take- it’s in front of me telling me. On another plus, you have to eat less because it does fill, you can only eat as much as will fit in the bag. Fingers crossed I will have the procedure reversed early next year.
If you are in a wheelchair then I’d say it’s a definite must. I’ve thought about it a lot, if my MS or my back problems get so bad then I think I would go back to a stoma without a second thought. The stoma teams are fabulous and will help every step of the way.
Go for it and good luck. It is hard to see your intestines poking out but I can see it being a massive positive for you. xx 