Over the last year or so I have been visiting this site, looking for advice, relief, or just something to read that sounded like what I was going through.
I am attending the Walton Centre for my tests and such, I live in Liverpool so the journey is relatively short. It has been this way for almost a year, I saw my neurologist for the first time last September and every three months since. The first signs of potential MS happened in November 2012 when my back went. GP thought the numbness in my legs was odd so sent me for an MRI. Three MRI’s and 10 months later the Neurologist sends me for an LP which comes back as showing signs of demylination, but I have a lesion in my c5 area, nothing in the brain stem. In February this year I had what I think is my third relapse and fourth event. The second happened after ATOS forced me to go to their centre for an assessment. A few days later I could not walk and have been on crutches and in wheelchairs ever since. The second relapse happened last summer, I got Shingles as well.
Current state is; feet and much of right leg barely any feeling. Tremors are getting worse. Bowel and bladder… issues. Swallowing difficulties. Diagnosed Trigeminal neuralgia. Can’t walk without aids. Emotional… mess. And other stuff.
Oh, I got awarded PIP. Enhanced.
I just… I know I have to watch and wait. It’s just difficult.