Was Diagnosed on 23rd December and in Limbo for next stage

Hi I was diagnosed on 23rd December. All new to Have spent 3 years with Knee problem which was finally operated on in October 25 though great ! all my stability problems will be sorted no more falling over.

Knee all healed but carried on falling over. Contacted my doctor who i am very lucky as lives 2 doors along and is also a friend. I asked if i could come and see him, explained my problems as my partner noticed my eyes were not syncing. he sent me for a emergency brain scan which i had 3 days later. The following day he received my report and knocked on my door the next evening asking if he could talk to me about my scan as everything was pointing to MS was meant to be a tick box exercise to rule things out. 23rd December is was told i had MS now in Limbo as next steps further brain scans and dye injections an spinal cord MRI. Now in limbo and waiting for my phone to ring for next steps and feel a little alone sometimes as my partner now struggling with me feeling tired constantly

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Hi @simonpyle72

Sorry to hear of your recent MS diagnosis. That’s must have been a shock. Have you seen a neurologist yet?

You will get referred to an MS nurse too who can help you understand MS and the treatment options available to you.

I think a lot of us can probably relate to that feeling of limbo, as it often takes quite a long time to get an MS diagnosis and then starting treatment can take a few more months too, if that’s the route you choose to go down.

In the meantime, we’re a nice bunch on here :slightly_smiling_face:. And the free MS Society helpline is really good for talking things through, including talking about your feelings if that’s something you want to do.

You might also like to look up your local MS Society group too. My local group has been really friendly and welcoming and it’s not all doom and gloom, in fact most of what we talked about was not MS.

Keep us posted with how you get on with things.

Go gently

Alison

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thank you for your response. gone next stage now and was given infusion of cra 2 weeks ago so time will tell. my latest MRIS showed 2 new lesions before my treatment started so hopefully will be under control now. got offered 3 different options for treatment . Infusion via hospital which apparently has 50% success rate . Injection at home via epi pen once a month 60% success rate or infusion via stomach with Ocra takes 10 minutes and monitored at hospital for 2 hours and has 70% success rate. its like saying do you want a mini, or BMW or Ferrari. hmm let me think about that ! Ferrari please

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