On tender hooks as I wait in Limbo land once more …
After I was initially diagnosed with MS (O-bands neg) in January, my initial neurologist has retracted his MS diagnosis completely and has now referred me to a MS specialist in London for a second opinion, thankfully he is really caring and I am happy with his care. I have yet to hear what his opinion is - I have an appointment next week.Luckily, I don’t have to wait too long.
I suppose I am asking how people manage to not think about things, while waiting another appointment? I have had some symptoms since my last visit - namely fatigue, vertigo and a strange numbness of half my face (I have trigeminal neuralgia). I am getting used to having strange symptoms most days and trying to manage work, children and symptoms (physio/some medication) and I think I am keeping a positive attitude.
I guess, I just wanted to reach out once more. My husband is brilliant and helping me massively, but it is nice to contact people who have been through this, as awful as it is.