Hey everyone, I hope you are as well as you can be 
I’m 37 F in the North of England and currently going through tests to see if I have MS. My GP “highly suspects” it is but waiting feels like an eternity.
I have been chronically ill since I was 15. I had glandular fever (Epstein Barr virus) which then caused hashimotos thyroiditis. I then had a mixture of things going on which have lead doctors around the houses with no conclusions (I mean, I don’t want to be that person but ‘young, female with chronic symptoms’ don’t really get listened to much).
Currently I am 5 months post op from a vascular nerve entrapment. Initially I felt great but I have slowly declined since coming off the medication that was treating the gynae related stuff (modulated my immune system much like pregnancy) and I feel like I’ve gone back ten years to when things were last at their worst.
I have extreme fatigue, trigeminal neuralgia, vision loss in my left eye, bladder dysfunction (suspected neuropathic bladder), high blood pressure and a few random other symptoms.
So far all blood tests are normal, there is several focal spots on my brain and one at C4 on my spine. I haven’t spoken to my GP yet so I don’t know about next steps or what all this means
I think I just needed to vent/speak to others in similar boats
I’m just so exhausted and want to know why I feel so rubbish - I’m not living right now, I’m just existing 