Hi,
I recently found out that I may have MS but have to wait a few weeks for my next appointment. I spent some time in hospital last week and they did an MRI scan, lumbar puncture. 3 days steroid drip etc… now I’m home and on the mend but progress is slow.
My husband is worried about me and his stress is making me feel terrible. I feel pressured to be better and he is constantly questioning why the whole diagnosis process is so slow.
Any tips on how to handle this as I’m already very concerned about my health, my mum died of MS when I was 6. She was only 30 and I am 43. Thanks
Oh my goodness Sara - I’m really feeling for you. Such a sad story about your Mum dying of MS aged 30 - so young I am so sorry.
Throughout my whole journey with MS since diagnosis in 2010 I have learnt that I have to be patient. Things do not move as fast as you want. It really is just a waiting game. So you just have to be really patient.
You don’t have a diagnosis yet so it might not be MS.
Can you talk to your husband about his fears and about how it is affecting you. Together you need to be a team to help,each other through this stressful time.
Please hang in there be strong and you will get there in the end just not as fast as you want.
Hugs
Min xx
Hi Sarah, my used to be very patient hubby has had his patience tested many times over the 22 years, I`ve had my health issues. He also has rheumatoid arthritis, so things have been extra difficult for him/us to cope with.
I used to gather info from MS Society to learn more, but he saw that as a negative thing.
See, I do see what you`re feeling chick.
I often put on a happy face for him…he cant cope with my emotions at all.
It will be worrying both of you with what happened to your mum.
Let me try to ease your minds if I can…
it is very rare that MS hits anyone so hard that it ends their life so prematurely…yes those cases do occur. Many many people live a good quality of life with MS. Many never need hard hitting treatments or ever need a wheelchair.
It is terribly sad how your mum died so young.
The things to try to get in order to be able to cope are;
good support from family, friends
think about having carers…I have a team to help me, with Direct Payments from Social Services
pace your activities
accept your limitations
NEVER beat yourself up for having MS or whatever else it is
I hope I have helped a little bit .
Boudsxx
Thank you. I’m just taking each day as it comes. Hopefully I’ll get my diagnosis soon.