Is anyone else having difficulty accessing Vumerity? I have been offered it but told by my neurologist that there is no current supply?! Have been waiting since April with no update as to to what the supply issue actually is (neurologist was vague about this?!) just wondered if anyone else was struggling g to get ot too?
Might help if you said which country you lived in and where so might get helpful replies. Supply likely to vary with location.
Our assumption would be U.K. I know nothing about the supply of Vulmerity but have you actually been told you have a prescription as it would be arranged by the hospital and delivered by special courier. All sources of delay.
Yes sorry, I’m in the UK (Leeds area). No prescription as yet, the neurologist and MS nurse are both saying there is an issue with “supply”. My name is down to start it as soon as it becomes available and it’s definitely my preferred choice but I’m not sure how much longer I should wait really. Just wanted to know if anyone else was experiencing difficulties obtaining it once it had been offered as an option.
I got my first batch on Friday
Diroximel fumarate
Formulary
* 231mg gastro-resistant capsules
- For use in line with TA794
July 2022: Biogen has paused the launch of Vumerity (diroximel fumarate) in the UK to mitigate a potential global supply constraint, which could lead to a temporary future supply shortage of Vumerity. For patients who have not yet started treatment with Vumerity (diroximel fumarate), initiations should be delayed.
NICE TA794: Diroximel fumarate for treating relapsing–remitting multiple sclerosis
Hi Sarah, thanks for responding. Out of interest do you mind saying roughly where are you based- I’m just wondering if it’s certain areas that are struggling to get it…
Thank you. I have some good news on this now. I chased up my MS nurse and she got back to me this morning to confirm that they finally have a supply (it’s only just come in). I’m due to do my bloods now and if all ok with those I’ll be able to start the treatment 