The way it was explained to me is that although a person on a high dose of D3 can have their D3 levels monitored this still don’t indicate if the higher levels are causing issues with the kidneys, such as stones developing.
My levels of D3 went from 34 to 119 on the last count, this took over 4 years to reach this level, taking 5000iu daily.
Over the 4 years I’ve had a number of blood tests done to monitor my D3 levels, and each time they showed an increase, which in my mind was a good thing because all along I’ve been told by the MS team that I needed to get high levels of D3 in the body, however there was never any indication that kidney stones were developing, it was only after a CT scan was carried out last year, for a totally separate issue that it was noticed I was developing stones, and even then although my GP had previously questioned the dosage and high levels she did not say to decrease the D3 because it was the neuro at the MS clinic who had suggested this dosage in the first place.
Because I was taken into hospital last weekend with the kidney stones (no fun at all), and the Urologist had mentioned that it was very possible that the higher dosage of D3 had probably been the catalyst for the stones developing I rang the MS clinic yesterday and raised my concerns, I was told that I needed to reduce the dosage of D3 by half (2500iu) straight away.
What really needs to be done alongside having your D3 levels checked is a kidney function test which can sometimes pick up if things are not right.
However, each time I’ve had a kidney function test done over the last 4 years there was never an indication that stones might be starting, it was only the CT scan that picked up on mine.