Hi everyone hope you all had a lovely xmas. I just thought I would give you all a wee update following my lumber puncture headache. Firstly I didnt realise that the headache can take up to 48 hours to start which is exactly what happened to me. Luckily it only lasted 3 days and was very unpleasant. Thankfully I was fine for xmas day. Today I have woken up with pain in my left shoulder radiating down to the tips of my fingers and my left hip radiating to the tips of my toes. Im wondering does this happen to anyone else or could it be a trapped nerve. I have an appointment with the neurologist the 2nd week of January and am convinced he will change his mind and rethink his diagnosis of ms. Maybe I am in denial as the ms nurse seems to think. Hope you all have a happy and healthy 2014. Ruby xx
Hi Ruby, so can I take it that you have already had a diagnosis of MS, from a neuro then? This being in denial thing, some folk are like that for quite a while. My own feeling is to accept it if it is absolutely sure, but otherwise keep asking questions and asking for tests, which show definite proof of ms. I feel it is a waste of precious energy to deny the truth. Use that energy in ways which will benefit you hun.
I say this because I was mis-diagnosed with ppms for several years.
After seeing 15 neuros in almost as many years, with a variety of opinions, ms was finally been ruled out and now I only have half a diagnosis, of spastic paraparesis/cause unknown.
I`ve had 2 lps and didnt get the headache. I laid flat and still for 4 hours with the first and a bit less with the second. But I bet it was truly awful. I am glad to hear it has gone now.
It is difficult to say of todays pains are ms related. But the neuro will tell you, if you still have them when you next see him.
luv Pollx
Hi poll This has been my problem I present to my gp with lhermittes I had been suffering for many months with various symptoms numbness tingling tightness and fatigue. It was only when I developed lhermittes did I go to my gp. He referred me to the the neurologist. The neurologist is my my mother and a siblings neuro as they both have ms. This is why the neurologist is convinced I have it also. So far my mri has been clear it does show white spots but nothing conclusive. My evp test so far 2 have been clear I am waiting on the 3rd one and my results of my lp which I know will be clear. As you can see I am sceptical