Update on last week, pain beyond belief

Hi everyone, firstly a big thank you to all the kind lovely people who took the time to respond to my post last week, it really helped.

i seen the nuero today, he said I am having a bad relapse put me on steroids,baclofen and told me to use the morphine when needed until I feel better. Also, I now have an ms nurse to ring he is going to set up appts. With ot and physio.

i have also decided to take a month off work, I run a small business and always feel I can do things better myself but now realise I have a couple of good staff members and they will manage without me. It means less money coming in but I need to get myself to a better place mentally and cannot do it while exhausted.

hope everyone is having a good day,


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Ann glad your getting it under control. REST sorry to shout but I bet you don’t know the meaning of the word, get some proper R and R. Don

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I’m so pleased to read all of that Ann. Very positive steps!

I think one of the hardest things about getting MS is learning how to let other people do things. Strangely it seems a lot of us have been in jobs where we had a lot of responsibility & learning to let other people take over is very hard.

Interestingly, up until about the 1960’s it was believed that there was a certain ‘type’ who got MS… high achievers and perfectionists… & I sometimes wonder if there isn’t some truth to that theory.

Anyway well done you for getting all of that together and for making that huge decision to have some time off.

Pat xx

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Well done for taking a break from work Ann, I am sure it will help you, it can’t have been an easy choice but rest is what you need right now.

good luck,

Nina x

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Hi Ann

Sounds like a positive appointment, so pleased it went well. A really good idea taking time off work, I am sure that will be beneficial, and when you feel ready for work again, do not forget that very important word …delegate.

Take care

Pam x

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Ann I agree with the comments made, rest can be very helpful. I was also very strong willed and very reluctant to take time off work. My job was very demanding, both physically and mentally but retirement was the best favour I gave my poor broken body. You may not be at that stage but you do need to accept that you can’t do everything. And don’t be afraid of the morphine. I don’t like it either but it makes a huge difference to my quality of life which is most important. It is highly addictive but you’ll get weaned off it slowly and comfortably when no longer needed. It took me ages to accept that but I’ve since been told I’ll be on it for the rest of my life but I function very well, even being allowed to drive. Take care and remember that the doctors know what they’re doing and won’t let you suffer.

Cath xx

Regarding morphine… Good thing to remember…

There are men who fought and were injured in the 2nd world war who are still on morphine… or were on morphine for the rest of their lives. They had families, careers and perfectly normal healthy lives.

Morphine when used properly and under the guidence of a doctor is a million miles away from what we think of ‘junkies’.

Pat xx


Hi pat & cath, you both hit the nail on the head I have a problem with the drug morphine, I am accepting I need it but until recently felt morphine/heroin what’s the difference was my feeling. Thank you both for your responses, they make some good points.

ann x