I’m completely new to the forum but have been reading around.
I’ve had Ankylosing Spondylitis for about the last 4-5 years.
I had iritis in September 2017 and then I had a bout of BPPV and nystagmus in August 2019.
I went to the eye hospital with the latter because my vision was totally wonky and I was going on holiday (remember those) a few months later and didn’t want my vision to be messed up (so I couldn’t see the views etc). I ended up having loads of scans includingng an MRI but they weren’t really able to diagnose anything.
When I had the MRI, I felt a bit dizzy getting up but I thought that was just me being a drama queen. But when I went to bed that night, I felt dizzy again when laying down. So I googled it, found that it was likely BPPV and did the Epley manoeuvre a couple of times a day to resolve it!
Because of my AS, I have a regular yearly appointment with a Rheumatologist. She decided to refer my scan to Neurology, whothought that I had MS. I had another MRI which showed lesions on the brain. I then had a lumbar puncture which was consistent with MS. I also had a chest MRI and blood tests back in October.
I finally have another appointment with my Neurologist in 2 weeks. It’s a phone appointment. After I confirmed the date and time, the secretary asked if I would be at home. I said yes and she said that was fine. The fact that she asked make me a bit suspect because I wonder if they wanted me at home as it’s bad news.
Anyway, sorry this was a long one. It’s just great to find a community like this.