I’m new to the forum. I have neuro symptoms that have been progressively appearing and getting worse since I was 13, so for the last 15 years.
I recently started with bladder and bowel problems and was sent to a neuro who suspected either demylenating disease, spinal cord condition, or congenital.
I was send for an MRI and EMG/Nerve conduction, the EMG came back fine - so odd as I couldn’t even feel the needles. The MRI of head and spine is all seeming normal, the only thing it says is: " There are a couple of small deep white matter high T2 and FLAIR signal abnormalaties".
Im confused as to what this means, the Neuro has arranged a 6 month follow up to see if we need more tests after this time and that he thinks it maybe a congenital condition.
You are quite young to have had possible MS or congenital symptoms for 15 years. But, there are no rules with MS, except those that exist it seems, simply to be broken.
It sounds like you’ve been left somewhat adrift. Being given an appointment in 6 months and meanwhile having to just worry and fret about what it all means seems unfair.
I wonder if you could write to the neurologist and ask him/her to explain what is meant. Or see your GP and ask them to find out what the neuro thinks really. Simply being told where you have some dodgy places in your brain doesn’t seem like something you want to live with for months if there’s any alternative.