I don’t quite know now to ask the q, I have been trying to mentally workout what I want / need to know so that I can ask, but I can’t quite define. But, as you guys hopefully will instinctlivy ‘get it’ hopefully my poor definition won’t matter.
ok, hear goes, lol. I know I have Rrms, I know my name…a little confusing as I use a different one on here. I know how I feel at any given moment, But, although I have read all the info, how I physically feel in relation to what I do in any given day makes no sence. I don’t get it ???
i want to accept my ‘new’ reality but I can’t make sence of it. One min I feel I am back in control, the next, for no apparent reason I feel so so shit I want to just sit down & cry. To clarify, I am not depressed, if I was, I would ask for the right support. What I am after is understanding of what I need to accept, how to best manage my fatigue/symptoms.
we all refer to ‘doctor Google’ as a strange & dangerous place, so I haven’t. But their must be some good info available but where. Am I a big girls blouse for not asking Google?
i get that fatigue is a recognised issue, I get that a relaps may have temporarily effects or they may stay. But I don’t ‘get’ my day to day on / off symptoms.
So, what can I read ? I Need to better understand, but I do not know where to find safe, accurate information.