Hi, Never written anything here, so sorry if I get it wrong.
I am just so fed up with MS, i’m 36 and was diagnosed when I was 26 and yes at the start it didnt really effect too much, but now, I just want to cut some of my limbs off. My left side is so heavy and numb and I constantly trip on a perfectly level surface, wohoo go me?? I even done a rather impressive body board manoeuver in the front door not that long ago.
To be honest, so days think I just need someone to have a good ole moan to, but what do you say. I’m not being rude or offensive and I love my Mum, but OH she does my head in. She ask, how you feeling today, i’ve learned to just answer with i’m fine, because if I say ‘my left arms is sore heavy etc’ all I get is ‘oh I know how you feel, my arms feel like that oll the time’ HOW?? my Mum doesn’t have MS, Its almost like she just asks sometimes so she can give me a running list of her sore bits AND what makes it worse, my sister is getting in the the act too ‘oh my legs are tired all the time’ - So just so I don’t have to listen, I always say now ‘I’m fine’ which is never followed by how are you, which may seem a bit rude.
I suppose I just want to be able to explain how I feel without the ‘oh I know how you feel’ line, its just so sole destroying sometimes.
Sorry about my wee rant, but I just feel awful, drained, heavy and the people around me seem to think they know how I feel better than I do and its so so frustrating.
My mum is “I know what you mean, I’m tired too” Like you, I want to shout NO YOU DON’T KNOW WHAT I MEAN. Basically the only people who will get it are on these boards and they can legitimately say that they experience something similar.
On the whole I keep it to myself and answer “I’m fine” just like you do because I can’t be ar*ed with explaining or listening to her list of woes. I think it is the nature of the beast that people just don’t understand.
Oh and no need to apologise - this is the place to moan if you feel like it. We can all join in - just like I did,
My mother seemed to be jealous of my ms… Silly flippin person, she made it feel like a competition… Bit like* nah nah my dads bigger than your dad* and whoever felt the worst got the most points. Lynn
mines aint my mum its my father who’s not got ms always the same response have a hot bath when not feeling good and some painkillers even though i have told him a million times hot baths make me worse. told him thats the way they use to test people for ms all we can do is laugh and say were fine
mines aint my mum its my father who’s not got ms always the same response have a hot bath when not feeling good and some painkillers even though i have told him a million times hot baths make me worse. told him thats the way they use to test people for ms all we can do is laugh and say were fine