UK- Can you get CCSVI diagnostics on the NHS? Has anyone?

Everyday living
1

I have had three CCSVI procedures (Balloon angioplasty) fter doppler scans.
1ST time in Poland = IJVs both dilated with balloon angioplasty - saw slight improvements in mobility but only lasted 4 weeks
2nd and 3rd times in Belgium = IJVS and Azygous all dilated with Balloon angioplasty, saw even slighter improvements these times

This was in 2010 - 2011. I dont intend to pay privately for any more CCSVI treatment, but least i gave it a go.

So last week i went to the National Hospital for Neurology and Neurosurgery in Queens Square, Central London, United Kingdom.
As it hd been 10 years since my last neurologist visit , he wanted me to have an MRI exams and a few other tests,

i told him about my CCSVI experiences but forgot to request some CCSVI diagnostics, if they even have them here in th UK on the NHS

So before i call up the hospital requesting a referral to a radiologist, is it even possible to have CCSVI diagnostics in the UK on the NHS?
Has anyone had diagnostics for CCSVI on the NHS?

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2

l can’t answer this - but l shall be interested in any response you get. 3yrs ago l asked my GP about the same thing - and l did show her all the info l had gathered on CCSVI. My GP - was very helpful and did refer me to a Vascular Radiologist privately.

l had the dopplersound scan done within a week - and it cost me £126. And yes l do have CCSVI- but l have not had any treatment. lf you are found to have ccsvi and do not have ms - you will be get treatment - but with ms - it is not ‘considered’ by the nhs to be a viable treatment. lts the neurologists against the cardiologists. Electricians against the Plumbers!!

lts a MAD MAD WORLD.

F

ps. Just Google - lnterventional Vascular surgeon/radiologist for your postcode and see what comes up - this is what l did to find the one l saw. [Dr.Paul Crowe in Solihull]

3

As an un-educated guess,the diagnostic procedures MAY be carried out whilst things other than MS are being investigated.Nearly three years ago I paid £1100 in Frankfurt for an MR Venogram and it proves I have a severe right side jugular vein stenosis

Wb