I haven’t been around for a while as I seem to have been super busy lately.
I wanted to say a quick hello to all the lovelies I haven’t seen for a while!
Also, a quick update on my Tysabri treatment as I have been on it 9 months now, and wow - how life has changed!
As some of you may remember, I had a terrible relapse/set of relapses in 2010 and couldn’t walk at all - couldn’t do much actually. It really was a very dark time, not helped by the 7 courses of steroids that I was given…
But anyway, things are really looking up at the moment, I feel as though I have been given my life back. A different life albeit as I still can’t walk a great distance due to residual damage. I really hate to imagine what life would be like without it.
I even resorted to LDN to try and help during the time I was waiting to be approved for Tysabri, thanks goodness it came through quickly as LDN did not suit me at all and knocked me straight back down again. Sure it can help with some people’s symptoms, but I never really struggled symptom wise, it was the disease progression that was the problem so Tysabri was the realistic option!
I’m really relieved I made the decision to proceed with it, even though it does come with massive risks, but doesn’t life in general!
I’d like to say a massive ‘Thank you’ to Rizzo, HKFooey, Alison100, Markolad, Chubster, Brog64, Lapreguiceira(sp??)…so many people who supported me through that time & helped encourage me on the right path!
Love & sparkles…Donna xx