Hi everyone, hope you are all well.
Just thought I would give a wee update. I don’t post much now but I do keep my eye on the forum.
Rachael has been on Tysabri now for 15 months and has been relapse free for all that time, had a small sensory relapse about 10 months or so ago and that has been it. She still suffers from fatigue and pain and has normal symptoms for someone with ms but things are going really well.
She turned 18, passed her driving test, bought a car and is now out all the time. She goes clubbing most weekends, works part time and spends most evening driving around with her friends. She has just applied to the Scottish ms society to do the tough mudder with her sister.
She is also once again talking about moving out on her own but wants to rent a flat near where we live, when I say near I mean she wants one that is within a 5 minute walk from home so that if she needs me and I don’t have my car I can get to her in no more than 5 minutes.
She is home tonight which is unusual now but she is due her Tysabri infusion on Friday so in flagging a little bit, she burns the candle at both ends and is squeezing every ounce out of life so it is no surprise.
Long may it continue.
With love and much thanks for all your support and great advice since I joined this site.