I’ve got SPMS and I’ve just started thinking about the possibility of getting a folding lightweight mobility scooter. I’ve been looking at some of the many threads here on this subject.
When I applied for a blue badge about three years ago someone on here advised me to complete the application as if it was my worst day. So I did, and to my surprise got the badge. Then I started to notice a slight but steady deterioration in mobility and was I glad that I’d applied. It’s been a godsend, and I’ve occasionally given similar advice to other people in a ‘pay it forward’ kind of way.
We live in London, about six minutes slightly uphill walk to the tube station - though rather more than six minutes for me and quite difficult these days but OK on the return journey. I use a walking pole as advised by my neurophysio.
I’d say that one of my worst symptoms with the MS is fatigue. I used to enjoy walking but find it very tiring. I’ve realised that it’s putting me off doing things that I like - art galleries and museums with my husband. We went to a museum last week and I could only manage the main museum hall then I was done for! We’re planning a trip to an art exhibition but I know that I’ll find it really tiring.
So I’ve started thinking about a mobility scooter. Where’s the best place to start? Is it possible to get a folding lightweight one that I could put in the boot of the car myself and get out without difficulty? So that I could go to our local covered shopping mall where I haven’t been for months? Not that I particularly like it! Or a scooter that we could take on the tube?
And why oh why does this seem like such a big step for me? I didn’t have a problem with the blue badge - I said to myself that if I didn’t need it then I wouldn’t have to use it - and likewise with a scooter - but I can’t even bring myself to discuss it with my husband in case he thinks I’ve ‘given up’. And it does feel a bit like that to me if I’m honest.
Thanks for reading. And if anyone wants to knock some sense into me it would be welcome!